Endometriosis - Words from a fellow Endo Sister. Very moving.

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by Barbara Hull Jacobs on Thursday, September 29, 2011 at 8:26pm


Dear Doctor,

Please do not tell me one more time I am too young.  Each time these words are spoken I think of what has passed. I, dear friend, lost my youth in a disease that many people have never heard of. 

Do not patronize me or tell me things will look up, this is a promise you cannot keep.

Please do not give me one more medications to ease my mind. I do not need a bandaid, I need a cure.

What do you do to move forward when one third of your life is spent in illness, pain and removal of organs?  What makes you accept that you cannot get back the years or piece of you that have been discarded.  

Forced to listen to doctors tell you how to cure yourself. It is simple they say just have a baby. Well dear doctor I beg of you to learn more than what you say, it is simply not true. Those that are blessed to have children and still suffer left with guilt and sorrow. To live with the fear that you could not give your children enough of what they need. To live with the fear that one day your daughter will suffer your fate.  

Many doctors and people believe if you simply remove the uterus, the essence of my womanhood, it will cure me. What do you say to the woman who believed you and are still in pain or increased pain after you have taken something you cannot give back? The common answer, let’s take more organs out! What, dear doctor, will you do when I have no more organs for you to take from my torn and broken body? Then we are left with the most heartbreaking answer anyone could get “It is all in your head.”

Dear doctor, I ask that you picture the woman you love the most in the world. Do you see her, do you have her in your head? Now tell her the pain will never go away. That her life will never be fully her own, you come up with the words to comfort her and you try to make it okay. Explain to her that you were wrong. I see it is easy to tell me, a mere stranger that I am not really in pain or that you were wrong. That even though I gave up pieces of my body I should just accept it. But again I ask, explain it to a woman you love. Is it as easy as you thought? How does it feel to wipe her tears?

We do not need your uneducated guesses, we need research and a voice. As we rise to bring awareness you need to be leading the way. Please I beg, stop building up walls that make it harder for us to move forward. Please stand beside and fight with us.

Please listen when we say “I have endometriosis and there is NO cure.”