Waiting on Results

Waiting on the results of my colonoscopy. 

**Warning** Just a bit of swearing going on in the post that follows. If the f-bomb offends you, then read no further. Disclaimer complete.

I guess there was a SMALL polyp and tissues taken - along with biopsy stuff.

I'm still not 'right'. I still have pain in the SAME SPOT!!! I can't wait to ask the doc how far she got and if she found anything near to where I said I was hurting.

I seem to recall her telling me she had nothing specific - that it was probably a gluten issue or hormones.  I remember thinking, "Hormones shouldn't make one spot all the time - day after day!" and I was a bit ticked that I just spent all the time, money, vacation pay and toilet paper - for someone to tell me, "Maybe it's hormonal."

What the fuck is that bullshit?!! I know it isn't hormonal! For crap-ass sake! Who the fuck hurts every day in the same fuckin' spot; day in and day out; sometimes all day?????!!!! ... due to hormones?

Whatever.  I like that doctor. She's nice. However, that's a fuckin' "I-don't-know-what-is-wrong-with-you" answer. So, if the biopsies come back with nothing wrong, once again, it's time to take my health into my own hands! WTF do we have docs for, if they can't even guide us into the right direction and we have to figure it out on our own anyway?

I know. There are times when doctors are AMAZING and we DO need them. I know that they are only human and we do not come with zippers in our abdomen. I just wish it wasn't so FUCKING EXPENSIVE to receive a, "Sorry, I can't help you." bullshit answer.

Bottoms Up!

It's 3:00 p.m. on 10-03-12, and it's time to start my "preparation" for my colonoscopy tomorrow.  I've just taken the 3, 5mg. bisacodyl tablets. I'm to take another 3 at 5 pm and then start drinking the Mirilax every 15 min. after that.  Hmmm...

I already feel like I have to use the facility...

If at any point this becomes too much information, well... too bad. It's my blog and I want to document it every step of the way. I'm hoping to NEVER have to do this again.

Time to go make some chicken broth. Actually, I'm so used to fasting and not eating solids that I'm really not hungry.

****
Okay, so it's now 7:22 p.m. and my girlie friend, Tracy, is here. She's making the b-day cake for tomorrow. I wanted her here to keep track of the cake because I thought I'd be running to pee out of my butt every 5 min. I wasn't far from wrong!! LOL

I'm ALMOST done drinking the 'stuff' and my poop - is really like pee - and it looks just like when I drank it. OMGAWWWWD!!! Tracy says, "You could bottle it and drink it again!" ROFLOL ewwww!!

So, the drink itself isn't awful. I thought it was gonna be awful. However, I mixed the stuff with coconut water and a bit of apple juice - I didn't use gator-aide... I hate gator-aide!

I have to stop here and go pee out my butt some more...

****It is now 8p.m.'ish. I think I've been pretty 'cleaned' out since the last time I wrote.  That wasn't as bad as I thought. The last few swallows of stuff took some mind power to get down.

****

7:45 a.m. - Thursday morning 10-04-12.  I pee'd out my butt one more time. Not much in there. Weight was 172.6#!!! AWESOME!

****
It's now 3:22 p.m. on 10-04-12 -
I'm home from the hospital.  Dr. took out a few things and did some random biopsies. I should know those results in the next few business days.

I  had a panic attack upon arrival at the hospital, but then focused on the paperwork.

They hooked me up to an IV and that was done in 45min.
They then hooked me up to a second IV and about half-way through it was my turn in the surgery room.

Fortunately, a classmate of mine was one of the surgical techs. She was very kind to me in school and was just as kind to me today. I started to cry again and I admitted that I was really scared.  They gave me a little more 'sleepy' meds to help calm me down to to lower my blood pressure. Tricia wiped away my tears, got me a warmer blanket and just kept rubbing my back. She was very caring. It was great.

I slept most thru most of the procedure. I did feel some slight cramping when, I'm assuming, she was removing polyps. She did tell me, "Ok, Tyra, you are going to feel some slight cramping now." I told her it really wasn't too bad and I was fine. I also felt them remove whatever it was that was in my tushy. I remember it feeling like I was pooping and mentally panicked a second! I thought, OMG! I'm pooping! However, I quickly realized that they were removing the scope.

Then they took me back to my room and I promptly fell asleep for over 2 hours.  I remember Matt coming in the room and the nurse peeking in, but then I was out for a good nap.

When my nurse, Darlene, tried to wake me so I could try sitting up and eating, I felt all woozy. I sipped some of my water with ICS in it.  That wasn't enough for her - about an  hour later she made me get up, go potty and drink some more. I even ate the applesauce they gave me, but not the Jell-o, nor the dry cereal. I wasn't sure if the cereal was g-free, although she said she did ask for g-free cereal. I still skipped it.

So, my  head finally cleared enough to be allowed  home.  Now that I'm home, I'm going to go lie down again and watch the movie, "The Goonies" then "You've Got Mail" then "The Holiday".

All-in-all, it wasn't bad. I don't have to do it again until I'm at least 50 years old. That will only be if I'm having any problems. I even got a pic of my insides!

****
10-05-12 - Friday - The Day AFTER

After all the IV fluid they gave me, my weight went back up to 175# - stupid water weight.

I had a bit of diarrhea this morning, but now my poop seems to be normal. Soft, but normal.

The one spot that I was worried about hurt again this morning. I have to ask Doc how far she got and where she was when she removed 'parts'. Nothing else hurts.  The only thing going on with me is that I'm groggy.

It's 6:09 p.m. Felt a bit nauseous today, actually, for most of the day.

I'm not very hungry, but I decided to eat a baked potato anyway.  This morning, I ate the topping off of the pizza we ordered for hubby's birthday treat.

I have not drank enough today. Honestly, I don't think I drank anymore than 1 cup of fluids today!

I'm making chicken stock, turkey stock, extra baked potatoes, a baked chicken with potatoes, carrots, celery, onions and a few beets. I have to work tomorrow, so I have lots of cooking to get done today.  I also want to make some Rice Crispy treats and a white chocolate Chex Mix with peanuts, cinnamon chips, coconut flakes and dried cranberries.

Initial Thoughts From G.I. Doc...

Initial thoughts are that my intestinal pain is NOT a gluten issue, but separate from that. While acknowledging that I definately have issues with gluten, she says my pain stems from something else.

What is the something else? Her initial "hope" is that my pain is coming from endometriosis tissues that have permeated the intestinal wall - that I now have endo tissue INSIDE my intestines. Here's a link:  AKA - Bowel Endometriosis. She said that once she's in there looking around that she will be able to see and remove the endo tissues, as well as anything else that maybe in there.

Further - The endo tissues permeating the intestinal wall has probably caused a (here's a link:) leaky gut syndrome. Or, did the problems with gluten cause a leaky gut??? Who knows. I don't care, I just want to repair it.

Here is another good article:  LINK HERE.

So, next week is my colonoscopy. I hope they find SOMETHING so I can give it a name.

To make intestinal matters worse, I ate some soup today that went sour. I didn't drink lots of it, but several good tablespoonfuls because I couldn't decide if it was bad or not. Then I tried another jar - it was also bad, so dumped all 4 quarts. They didn't seal quite right and went bad on the counter. So, now I have diarrhea on top of my "normal" pain. 

It could be worse. I'm not complaining, I'm just journaling.

Fibro Vlog 1

What I Eat Can Hurt Me...

Saturday we went to a Billy Graham music festival. Lots of great music - Skillet, The Afters, Lacey from Flyleaf and many others were there. We took a cooler for food on the way there and back - to eat in the car.  This is where my post title comes into play...

There are many g-free items that I can eat, some are alright to even eat cold.  But, I didn't have anything substantial to take along.  Sure, there are items like eggs, cold meats, certain corn based snacks, V-8 juice, fruits, veggies, etc., but I didn't want to eat cold eggs and ham all day and I'm allergic to most raw fruits and veggies.  So, I ate before I left and took g-free snacks and then ham sammies for the rest of the car full.  By the end of the day I was good and hungry - the food at the festival wasn't really g-free friendly and the lemon aide was $4.00/ea. 

I ended up eating a regular ham sammy.  Then the rest of our caravan went to McD's.... I was so hungry - I ate part of a Big Mac and some of my hubby's Cola... praying the whole time it wouldn't hurt for the next three days. I just got over a 9-day flare up. I really didn't want to go thru that again.  But, I ate the food I knew would hurt me anyway.  It was about this time when I wished for the days when I could make myself throw-up. Mentally, I felt so awful for putting that gluten back into my system - all I could think of was ways to make myself puke.  I didn't succeed and it all stayed in my stomach.  However, as soon as we got home I took everything I had in the cupboard and fridge to try to combat the pain I was expecting to hit me the next morning.

That worked out, albeit, slightly. I didn't have the pain, but every other problem was there. I'm okay with that. I'm trying so hard to get my intestines to heal and I know it can take months and months to do that, so I was totally kicking myself for eating the sandwich and McD's, but I was HUNGRY!  I can be so dumb...

So, today, I'm going to just take it easy on my intestines and ingest only liquids - chicken stock, colloidal silver, aloe vera juice, coconut water, kefir and water.

Another Doctor Visit

My poor body has just been through the wringer lately. I went back into the doc's office because I thought an infection I had a few weeks ago was either back or not completely gone.

Long story short, it's a brand-new infection!

More meds.

Then another yeast infection from the antibiotics.

So, more meds to counteract that side-effect.

Then, a different pain med, because the antibiotic will do something funky to my body that will make it so my regular pain med WON'T work.

Three scripts in one day! That's a record for me.

Needed My Walker...

I was in the middle of a 5 day flare-up when I could no longer get to a standing position from a sitting position.  When I could get upright, my knees gave out and I tumbled onto the futon. FUCK!

Time to get out my walker. I only needed it, at first, for the one evening, but then I needed it again two days later.  The only thing I don't like about it is that it has wheels and sometimes goes faster than I do! I feel like it will ZOOOOM out in front of me.  Here's a pic I found on the net, but mine is all black:

  

I used to borrow one from my Gramma - I liked that one better. I may have to find one like it, since Gram is no longer with me.  Anyway, I liked that one better because it didn't have wheels - no zooming out from under me.  It was light weight too, so I could have someone take it upstairs and then put on my side of the bed - there to help me get up and out of bed in the morning! That one looked like this: 

The last time I needed a walker was... I think in 2010 and it was around Christmas time. I decorated it with garland and battery operated twinkle lights! It was great fun. Well... as much fun as could be had! LOL

I'm on the way out of this flare-up, but it sure is taking longer this time...