Kinda hurting today.

I woke up from a wonderful night's rest. I felt all refreshed and ready to hit the day running... then I tried to get outta bed. I got out, but I hurt in several places! 

What the heck?

Oh well, take a pill and deal with it!

Fibromyalgia....

I have that too!

Good grief.

Funny excerpt from a book by some Dr. dude: When I say I don't feel well or that I feel like I've been hit by a truck, what I mean is: I'm being squashed by an armored SWAT vehicle loaded with a dozen men in full gear carrying automatic weapons and a small cannon.

Endo Pain

Achy today.

Endo cysts

I had a pain today - like a cyst about to burst pain. I reached down and felt that area, like to hold it and keep it safe - it was tender! I could actually FEEL the cyst on the outside of my jeans.

The pain did go away. Thank you Lord.

Now I'm extremely tired.

Endo pain

Stupid, stinkin' annoying gas pains today! grrr

Gluten free helps tons, but it (gluten) can sneak in there and annoy the hell outta my system!

 Last night I ate lumpia and rice. Lumpias are Filippino egg rolls ----- the wraps are made with wheat flour.   I only ate 3 last night. Today my system was 'alright', but not perfect.  So, for lunch today, I ate 3 more... now my system is screaming angry and completely pissed at me!!

Endometriosis ~ What brings me Joy

Things that I need to remember while I'm in the throes of pain.

Love

It's NOT cancer

Rick

Ben

Matt's love for me.

Matt's devotion to me ~ in sickness and in health.

Soft Sophie hugs.

The Sound of Leaves

Movies

Coco

Chocolate

Sunlight filtering thru lace curtains

My Mother's voice filled with love and concern

Warm brownies

Bing Crosby singing

Soft pillows

Big sweaters

Making anything in my ART STUDIO

Sunday 10/30/11

Pain in the descending colon. It goes away, but enduring it takes a bit more.  I got thru it and even sang on the worship team that morning.

Thank you Lord for letting it pass.

No Pain Kind of Day

Today is a "No Pain Day" kind of day.  Thank you Lord for the reprieve.

Endometriosis

Cycle is not too bad so far. 

Praying that I'm 'back on track' after all of the emotional turmoil I've been thru this year.

That would be wonderful!

Endometriosis - 2 days before my cycle

Having a gluten challenge this week.  The gluten has aggravated my endo problems.  I'm hoping that this cycle won't be too bad.  I'm cold and very tired.

Feeling A Bit Blue

I was feeling a bit sorry for myself when a friend mentioned that she was having another child.  This feeling has stayed with me for about a week now.  I am surprised that I am tearing up over it. I'm happy for her, just bumming for me.

It's also the week before my cycle, so I'm sure I'm more emotional and self-conscious than normal.

It's been 15 1/2 years since my last baby and I'm not over that yet.

It's a loss.

Endometriosis ~ Rough Night

I don't know what I did.

I don't think I have to DO anything.

The pain can just come on.

Suddenly.

Unexplainably.

Inopportunely.

Waves of pain.

Out-and-out kicked my ass.

Cannot even gently touch me.

No pillows for support because even they hurt me last night.

Just lay there.

Still.

Trying to breathe.

Gasping for breath.

Breathing so rapidly that I thought I was going to pass out.

Pain so incredible that I thought I was going to vomit.

Trying to be quiet so I don't wake up the whole house.

Hubby feeling helpless because he can't even touch me, and my hands are clenched into balled fists.

Minutes pass. 

Slowly.

Later, 45 minutes later, the waves are less intense.

The burning subsides.

Slowly the pain becomes an ache.

Slowly the ache starts to move out of my body.

Slowly sleep is allowed to overtake me.

My breathing becomes normal.

Deep.

Peaceful.

Dawn brings a new day.

Endometriosis - Fight Like a Girl blog - I love this blog!

http://www.thefightlikeagirlclub.com/

I love this blog! I love the design and I especially like the articles on Endo!  Please take a peek when you have time.

Endometriosis - Words from a fellow Endo Sister. Very moving.

If you would like the facebook link, please go here: http://www.facebook.com/EndometriosisAwarenessCampaign#!/notes/endometriosis-awareness-campaign/dear-doctor/216881801709289

by Barbara Hull Jacobs on Thursday, September 29, 2011 at 8:26pm


Dear Doctor,

Please do not tell me one more time I am too young.  Each time these words are spoken I think of what has passed. I, dear friend, lost my youth in a disease that many people have never heard of. 

Do not patronize me or tell me things will look up, this is a promise you cannot keep.

Please do not give me one more medications to ease my mind. I do not need a bandaid, I need a cure.

What do you do to move forward when one third of your life is spent in illness, pain and removal of organs?  What makes you accept that you cannot get back the years or piece of you that have been discarded.  

Forced to listen to doctors tell you how to cure yourself. It is simple they say just have a baby. Well dear doctor I beg of you to learn more than what you say, it is simply not true. Those that are blessed to have children and still suffer left with guilt and sorrow. To live with the fear that you could not give your children enough of what they need. To live with the fear that one day your daughter will suffer your fate.  

Many doctors and people believe if you simply remove the uterus, the essence of my womanhood, it will cure me. What do you say to the woman who believed you and are still in pain or increased pain after you have taken something you cannot give back? The common answer, let’s take more organs out! What, dear doctor, will you do when I have no more organs for you to take from my torn and broken body? Then we are left with the most heartbreaking answer anyone could get “It is all in your head.”

Dear doctor, I ask that you picture the woman you love the most in the world. Do you see her, do you have her in your head? Now tell her the pain will never go away. That her life will never be fully her own, you come up with the words to comfort her and you try to make it okay. Explain to her that you were wrong. I see it is easy to tell me, a mere stranger that I am not really in pain or that you were wrong. That even though I gave up pieces of my body I should just accept it. But again I ask, explain it to a woman you love. Is it as easy as you thought? How does it feel to wipe her tears?

We do not need your uneducated guesses, we need research and a voice. As we rise to bring awareness you need to be leading the way. Please I beg, stop building up walls that make it harder for us to move forward. Please stand beside and fight with us.

Please listen when we say “I have endometriosis and there is NO cure.”

Endometriosis - Awareness Campaign

http://www.facebook.com/EndometriosisAwarenessCampaign

Above is a link to a neat page on facebook.  Lots of information.

Endometriosis - What I believe

I believe in a natural progesterone cream (Dr. John R. Lee's books and website can help with more info.) also staying away from soy (Dr. Wong's website totalityofbeing.com for more info.) and being gluten free! Natural no hormone foods. So much differing advice, but we are all different so different things will work for all of us. I hope you find something that works for you. Please email me if you'd like to talk more.

Endometriosis - Good days

I've had several consecutive pain-free days with my endo symptoms.  The pain-free count stopped this morning.  However, my pain was short-lived and went away in about an hour or so.  My pain this morning was in my descending colon. 

Otherwise, I attribute my pain-free days to being 99.9999% gluten free for almost 4 weeks.  I also attribute my pain-free days to staying on task with my progesterone cream, enzymes and the Myomin herbal supplement that I am taking.



Okay, so my liquid fast does not
include wine, but the photo was
pretty.  I found it at 15 uses for
empty bottles.



I've been on a liquid fast for going on three weeks now. Last night I broke the fast and ate some solids. Today is my hubby's birthday, so I also ate solids for lunch. No cake though, but I did enjoy Breyer's Lactose-free vanilla ice cream with my added peanut butter.  Such a great treat.

It amazes me how great I feel. I'm amazed at being pain free for a few weeks now. Amazed at how I feel. So, when I felt minor pain this morning, I was surprised. It was almost funny. The pain woke me up ~ now that isn't funny. The funny part was upon waking and not being totally awake and coherent, I couldn't figure out what was going on with my body! I couldn't find the pain. I couldn't put a name to what I was feeling. Then I said, "Oh, it's you. You're hurting me again. Why are you here this morning? What do you want?"

Response to My Fb Post

Ladies! Thank you so much for the support! - what wonderful advice. I, too, do the gluten free, the swimming and the soft pants on those bad days. Thank you so much for sharing.

Recently, I've heard that gluten and endo girls DO NOT mix well. So I'm gluten free. I can't tell you how great I feel, I don't have the words, but you already know how great I feel if you, also, are gluten free!

As far as workouts go - I'm not able to take advantage of hard workouts either. It doesn't pay to go to a gym and pay $$ because it would be a waste! I was able to find a hotel that allows the public to use their pool for $3.00 a day. Sometimes I spend alot there, and then some months none at all.  But at least its as I can and no membership dues, etc.  Swimming is a wonderful and complete body workout anyway.  I also like jumping/skipping rope and hula-hoops!!

I've not had to give up caffeine. I've heard lots of endo girls can't do caffeine tho'. I'd miss it.

I really want to add:  A natural doctor told me that it can take 6 months or more to heal the interior intestinal wall from gluten intolerance aggravation or damage.  So, I decided that I was going to fast to try and speed the healing along.  I drink Kefir and yogurt, kombucha, lots of teas, water, coconut water, home-made stock soup/broth, aloe juice and ionic colloidal silver.

If you can go natural in your healing I highly recommend it.  My OBGYN calls me his medical freak because I defy every medical advisory he has given me -- and it all works.  He doesn't understand why!  LOL  I believe in doctors, but I want them to work with me naturally too.  It's a good balance. My endo blog journal (http://tyrasendo.blogspot.com/) has what I do. I just started my journal, even though I've been dealing with endo since I was a young girl.

I hope someday that we can all find a good internal balance and not gage our days by pain, or even by the hour.

Thank you again for your support. I must say that my tummy went down and since I've been gluten free, it hasn't been cranky with me!

Pain Days Come and Go

My Fibro & Endo are both aggravated by poor diet and stress, etc.

Back in April (2011) I lost 2 part-time jobs and a Gramma died. Then in May my Dad had a heart attack. He lives in a state that is a 3-day drive away from me.  In June, another Gramma died.  July saw me with a bad back.  During those several months, I was not taking very good care of myself.  Lack of sleep, lots of stress and forgetfulness.  I forgot to take my supplements regularly, if at all and had to succumb to pain meds for my back and sleeplessness.  I also had to eat in the car between working and visiting in two different cities.

I am now back on track, but with my last cycle I could certainly feel the effects of my forgetfulness and previous high stress levels!  My cycle was incredibly hard and painful. I passed large blood clots and had several headaches.  In April I remember I actually had to take Ibuprofen for the pain. My sleepless nights in May, spent waiting for that phone to ring and making medical arrangements for my Dad created a perfect body environment for fatigue headaches and body aches.

I must stress how important it is to NOT let the small adjustments to your health habits slide away from you during times of stress.

 I am a bit... anxious and nervous to see what my next cycle will be like.  I am also trying to remain calm and centered. Focusing on peace and tranquility; health and diet; and keeping stressful situations at bay.

I have closure with my Grandmothers' deaths and I just recently found some closure with my relationship with my Father.  I have lots of other people to pray for, whose situations are more dire than my own and I'm trying to keep my focus on the Lord.

I now have some free time, due to the passing of my Grandmother and I am using that time to get back into my art hobbies.

I am also buying enormous quantities of chocolate from Fleet Farm - they just had a sale!

Please take care of you. Remember who you are without pain.

Gentle thoughts and hugs ~Tyra